Newly Diagnosed with Lupus - Now What
So, you’ve just been diagnosed with Lupus and a million things are running through your mind. I know, I remember when I was diagnosed. Not a great place to be. However, I am here to provide a little insight for you.
Some key things to know about Lupus are, what it is, how it can affect you and things you can do to help alleviate symptoms. All important to learn about and help feel more confident in moving forward.
Lupus can be mysterious with each flare. It seems they are never really the same. Some symptoms may appear each time with other symptoms that appear randomly. I know personally I have some symptoms that are with every flare combines with a variety of different symptoms which fluctuate with each flare. There’s no rhyme or reason to this, it’s just the way it is. I have learned to accept that. doesn’t mean I have to lie it, but it’s easier to manage when I accept this is what I have been handed for this particular flare. Now, what can I do to reduce the symptoms and time line?
Some Key Things to Try
Finding Support is really key. I cannot express this enough. It can be a combination of family, friends and a lupus community. It is very helpful to be able to talk and hare with someone who lives with Lupus. They understand your pain, frustration and the life you are living.
There are some really good books as well to help you.
You will find that some people will shy away from you. You will lose some “friends” but gain some new ones and discover these people that truly are your friends. ‘
Taking time to rest each day so critical. I cannot express this enough – especially during a flare. Being mindful of what you eat, proper sleep and/or medications can help.
Stress management goes a long way in decreasing the amount of flares and duration when you are in one.
Finding the right exercise program for you will help too. Slow moving yoga, meditation, light weights, swimming, walking can all be a part of your routine. Be sure to speak with an experienced trainer. I can also help with this. Find what you love and keep moving. This will help with stress, inflammation, anxiety, brain fog, etc.
You may try alternative therapies like Reiki, aromatherapy, accupuncture, accupressure, chiropractor, massage, counseling, sound therapy or art therapy to name a few.
Making the Change
There will be changes you’ll need to go through and adjustments to be made but you can find some solace in living. Be carful to limit your frustration during this learning curve. I know it’s hard, but you will educate yourself and make changes if you want to feel better.
I’m here to help however you need. I can be an ear, answer questions or be your coach on this journey. I wish I had more guidance from someone who could have helped me learn bout how to deal with Lupus when I was first diagnosed. That’s why I do this now. The knowledge I’ve obtained has been long and hard learned but I know that brought me to where I am today.
Stay tuned for more on Lupus and other autoimmune diseases on my blog. See you in the next post!
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